Tag Archives: CSF Leak

Breaking Free! From Self Pity 

 “Self-pity is our worst enemy and if we yield to it, we can never do anything wise in this world.” – Helen Keller (1880 – 1968)

(Helen Keller, although both deaf and blind became an author, political activist and lecturer.)

Do you ever have moments when you look at your life, your problems, your struggles and before you know it you feel so rubbish that you can hardly find the energy for anything?

Days or moments when you can only see what is wrong and struggle to see what is right?

I certainly do.

However, 

I am learning not to let these moments control me or to linger in my thoughts for too long. 

I am learning how to break free of them more quickly. 

Some days it is more of a battle than others.

But I have to fight, because I know that self pity will destroy us if we let it. 

When we feel sorry for ourselves we become consumed by our own problems. We cannot break free from the “if only you knew how hard it is for ME,” mentality.

We become consumed with ourselves. 

I am currently writing this post whilst lying flat, as I talked about in Surviving the Storm Eight months on. I have had a challenging few weeks with recurring CSF Leak symptoms which mean I have to lie flat for hours during the day to control them.

Over the past 2/3 weeks I have not been able to stay upright for as long as I did a couple of months ago.

And it is frustrating! 

There is only so much you can do lying flat! 

People have been asking me… ‘How are you doing?’ and I can’t lie. Things are a challenge at the moment.

That is my reality. 

Sometimes they then respond saying ‘that must make you feel down’. Thankfully this is not the case, but some days I do have to fight those feelings. I have to work at keeping the right perspective.

This is why I am writing this post. 

It’s currently 10am and I have been lying down since 9:30am (only having been upright for 2 hours). As I lay down I felt a wave of self pity begin to prod at me. I felt the ‘poor me’ begin to knock at my thoughts.

But as I felt this, as it fought for my attention, pulling me to listen to its complaints.

I decided I had to get free from it. 

How did I do that?
Well I am doing it now.
I am writing this post. 

I am speaking back to those thoughts trying to take control and saying;

Self pity you will not take me down. I refuse to be your victim. I refuse to be anyone’s victim. 

So today I invite you on my journey of dealing with my self pity.

In real time. 

In the exact moment it is happening. 

This is not theory, it is a practical lesson in breaking free from something that can break us – if it’s allowed to.

I don’t always get it right. I still struggle with self pity and selfishness, as we all do, but I am learning ways to stop it in its tracks.

Here is what I have learnt.

1. Remain Thankful 
Being thankful is the number one weapon that we can use to fight self pity.

A thankful heart is not only the greatest virtue, but the parent of all the other virtues. ~Cicero

I thank God for all the good parts of my life, how much better I am than at the beginning of the year & how much I can do. (I can write this post, for instance which I couldn’t do at first). I am thankful it wasn’t and isn’t worse than it is and that I have a great family and support network.

Whether or not you believe in God we can always learn how to become more thankful for life and it’s blessings.

2. Think about other people more
We can only get the focus off ourselves if we move it elsewhere. If we allow our eyes to be opened to the problems and needs of others it soon puts our problems into perspective as I wrote about last week.

Our mountain shrinks in size and becomes more of a hill in light of what some people face.

I have read of many people with CSF leaks who are in a much worse place than me. Compared to others my story has not been so bad. 

3. Hold onto hope. 
When hope is gone we feel like we have nothing to live for.
This is why depression is so destructive, because it strips us of our hope and of our energy for life. (I am so thankful to have not reached this desperation myself, but I have stood along side enough people struggling with it to understand the damage it causes and how difficult it is to get free from). 

How can we rediscover hope in the midst of hopelessness?

We have to battle through all the darkness & negativity to find that one beam of light. To find those encouraging words and thoughts and hold onto them.

We have to keep pressing through and believing we can come out the other side.

There is always hope to be found if we will seek and find it.

4. Changing the what ifs 
We have to choose to do away with the negative ‘what if’s’ about the future and focus on the positive ‘what if’s’. This doesn’t mean pretending or avoiding reality. We cannot live in denial. It just means choosing to see more of the positives rather than being blinded and consumed by the negatives that we cannot change.

5. Optimism vs pessimism

“Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence.” – Helen Keller”

We can all learn to think more optimistically. Even if we are a ‘glass half empty’ person – we can change.

I know from my own life, I have moved from a more pessimistic to a more optimistic outlook over the years and it partly comes through retraining the way I think.

We don’t have to stay the way we are, we can learn practical disciplines which help change our thought processes.

6. Feed yourself with encouraging thoughts and words and get around encouraging people. 
For instance when you feel self pity knock at your door, whatever you do don’t sit dwelling on those thoughts.

Be careful about listening to sad songs or watching sad films that perpetuate the negative feelings.
Instead, you need to be encouraged. You need to find people and things that uplift you.

I keep a store of great bible verses and quotes in my phone for this purpose. So I can always find words to counteract negative feelings when they come. I also then have words for others when they need them.

Be intentional.

Store up encouragement for that rainy day. I really do believe that a few simple words can change your outlook for the whole day.

Self pity is always lurking round the corner in our lives. It calls us to listen to its complaints and excuses. But ultimately, it only leads to despair and destruction in our own lives and relationships with others. It amplifies our selfishness and drags us into dark ways of thinking.

We all need to take care of ourselves. We need to be real about the challenges we face. We need to ask for help when we need it.

However, 

It is possible to face the reality in front of us without letting it consume us. We can say to ourselves, ‘yes this is hard, it’s painful, it’s a struggle… BUT!!!! … Despite it all I still have so much to be thankful for’

That is the way to freedom.

“Self-pity is our worst enemy and if we yield to it, we can never do anything wise in this world.” Helen Keller


What practical things do you do to deal with self pity? It would be great to share your ideas with others. Please do comment below. 

To read more about my ongoing story of living with a chronic spinal CSF Leak click here.

Here is a brilliant 2 min animation about Spinal CSF leaks.

For more information about spinal CSF leaks please see the UK charity website at www.csfleak.info or the US charity website at www.spinalcsfleak.org.

Surviving the Storm Eight Months On: My Battle with Concussion & A CSF Leak

A day.
A moment.
An accident.
8 months ago.
When things went wrong for a season.

A fall.
A brain injury.
An undiagnosed spinal injury.
Months of craziness.

This is my update.

It’s for those who know me and it’s for those who don’t. I know some of you are finding these blog posts by searching online.

I want to tell you my story. In the hope that it helps you. Perhaps your own story involves injury and illness, brain or spinal injury. Or maybe it involves another type of storm.

We all face stormy seasons in our lives.

Life is a journey of discovery. We are constantly learning about ourselves and what is around us.

Self awareness is an important part of our growth. My husband and I are on a constant journey to understand life better: Why do we do what we do and feel what we feel? What is our purpose in life and how do we live it out?

We then hope what we learn might help others too.

The journey of self awareness is a humbling journey and yet it is a healthy journey. It helps us to process and break free from thoughts and behaviour that seek to control us.

The past 8 months have been one of the most intense personal journeys of growth I have experienced. As I wrote in Surviving the Storm Six Months On, I have come face to face with many of my weaknesses. Which has been hard and painful, but also a journey of discovering new strength.

wolken

So 8 months on.
Where am I now?

I would love to say that everything is fine. That I have made a full recovery and we can leave it all behind us.

But that is not the truth.

At this moment, I am writing this post lying flat, which still forms a significant part of my day. I was up at 6am, as it was the kids first day back at school. I rushed about getting them ready, dropping them off, shopping, sorting, cleaning etc. Then by about 10am I recognised that I needed a bit of ‘down time’ to ward off symptoms and to pace myself through the day.

If you have read my previous posts, know about CSF leaks or have spoken to me about it, you will know that the postural side of the injury is a key part of it.

Basically when you have a CSF leak, your spinal fluid leaks either from your skull or from the part of your spine that holds the spinal fluid.

We never located my leak on the various scans I had, but we assumed mine was probably a spinal leak. This means the spinal fluid leaks into your body from a tiny hole or tear in the membrane that surrounds your spinal cord.

This results in ‘brain sag’. The brain lacks the support of the spinal fluid and so drops in your skull when you are upright (either sitting or standing).

This causes various problems. The most reported symptoms are severe headaches and neck pain as everything gets squashed and stretched inside. But there are a multitude of other symptoms.

One of the key ones for me at first was severe dizziness and major balance issues (I could hardly walk without support for almost 3 months). This is so much better but still manifests as a spaced out/ cloudy feeling quite a bit.

I was diagnosed with a CSF leak about 8/9 weeks after my initial fall off a ladder (following an initial post concussion diagnosis). After finally being admitted to hospital with various symptoms, about 18 days lying flat in a neurology ward, having 3 MRI scans, which were inconclusive, and a lumbar puncture, which showed low pressure spinal fluid – I had a blind epidural blood patch. (They take blood from your arm and inject it into the epidural space in your spine, in the hope that the clotting helps to heal the leak and increase the spinal fluid pressure. Mine was a high volume blind blood patch, because they couldn’t find the leak on MRI scans, which is not unusual. If they know where the leak is then patches are often more successful).

All this treatment had a significant positive impact and, as I wrote in my first Surviving the Storm post, it brought a sense of normality back to my life. I could spend much more time upright. I was able to do most things and thankfully could drive again (although I stick to short journeys at present because my head can still cloud over at times).

Since then there has been a general gradual improvement.

However,

I am still not back to where I was pre-injury and that is a challenge. I have days that are better and days that are more difficult. But the persistent symptoms are still a daily battle.

I have had to develop new routines that involve regular ‘lying down flat’ breaks. Often these are around lunch time and in the evening, although it varies a lot as I try and preempt what I need to do and lie down before and/or after going out.

I tend to find evenings harder generally. So on busier days I often spend a lot of the evening lying flat (either in bed or on the sofa – as long as my head is pretty flat). Less busy or less symptomatic days it is not as necessary.

I feel extremely blessed that in general the pain scale is nothing like it was around the time I was admitted to hospital. Back then it regularly reached 8 or even 10 out of 10 (comparable to having a baby ladies).

These days thankfully the pain is not as severe and takes longer to build up.

It is nothing like any headaches I had ever experienced pre-injury.

It’s more of an intensity, a pressure that builds up in the lower back of my head and in the top of my neck, leaving my neck feeling really stiff and painful and my head full and cloudy.

When I do lie down often that same feeling often drops to the bottom of my spine around where I had the blood patch.

Similar sensation; different place.

One way I explain it to others is it’s like having a really bad head cold and your head is so full of pressure that it’s hard to think and do things. If it’s a particularly bad one I also can feel it behind my sinuses which makes the sensation more head cold like.

This feeling varies in intensity throughout the day. Often, first thing, I feel fine. It then builds up to varying levels depending on what I am doing and how much lying down I have done.

As it builds up, things get harder. I might take some paracetamol or ibuprofen which helps a bit. Caffeine is also proven to help, so I usually get dosed up on that in the mornings.

As it gets worse I tend to go quieter as everything gets harder, both mentally and physically. The pressure, pain and stiffness builds, which is often coupled by a spaced out feeling and still sometimes a bit of photophobia.

Most of the time I will look fine outwardly. But if you see me when it gets really bad you might pick up on a spaced out, distracted, stressed or pained look on my face.

I often try and keep going for a while when I get like this, until I reach a point where it gets so bad I can’t think straight, the pressure and pain builds and I know I need to rest and lie down. I also try and preempt it and lie down before it gets too bad.

When I lie down there is an element of instant relief. I often say to my husband before I lie down I sometimes just feel like I want to go to sleep; you just feel wiped out. But soon after lying down I can think straight again, my head gets clearer and the pressure eases.

(This was often the way it was at the start, following my injury. I found I could have decent conversations with people if I was lying down. But I didn’t last very long and often couldn’t think straight for very long sitting or especially standing or walking).

The current physical symptoms vary in their intensity on different days, depending on how busy or strenuous the day is and even what time of the month it is (yes ladies it gets worse then!)

During the recent summer holidays things generally seemed better. I felt I had more energy and perhaps needed to lie down a bit less. It helped that I could take it easy in the mornings, lie in bed for longer and add in breaks where necessary.

This summer we have done a lot of clearing out and sorting thorough stuff, which I wrote about in my last post. That kind of work is quite physically demanding so I would rest more at the start of the day and then by the end of a day I usually had to lie down more.

It’s all about managing your time and energy reserves. I also spend time praying and getting encouraged with great words from the bible and other quotes. This helps keep my thoughts together and focus on good things through the tougher and more frustrating days.

wolken
Storms come.
Life goes on.
We cannot wallow in the challenges or they will swallow us up.

I have been getting better and I want to hold onto that and keep believing for complete healing and freedom from this storm soon.

The storm has calmed but it has not yet fully passed. You learn to live with it to an extent and yet I also choose to believe it will fully heal in time.

My faith encourages me to not live life defeated or deflated. Hope always drives us forward. Even though it can be a humbling process balancing belief and reality.

I am deeply grateful for all the health and healing already attained and the sense of normality it brings.

Most of all I am thankful for the good that my experience will bring. There are always positives to be found, even in hard times. Even the darkest times can be used for good.

Whatever your unique storm:
Never let go of hope.
Never stop believing.
Never stop seeing the good, even when it’s painful.

Perspective is vital.

There is always something to be thankful for.
There are always others worse off than you.
We all suffer and feel pain in one way or another.

As a popular saying goes:

“Life is not about waiting for the storm to pass; it’s about learning to dance in the rain.”

I have decided that I will always find the ways and means to dance through life, even in the midst of the rain.

It’s not always easy, but it is the only way to live and thrive through both the ups and the downs of life. It is the only way to find the strength to survive the storm when it hits.

This is my story of a unique season in my life. A storm that has come, that is passing but is taking its time to fully leave.

I don’t know what storms you face? An injury, illness, relationship breakdown or bereavement? Perhaps your prognosis is much worse than mine? Maybe your storm is hidden from view?

But there is a way forward:

We can learn how to dance in the rain.
It is the only way to thrive in the midst of the storm.


I would love to hear about your stories and experiences. Please do leave a comment below or on my social media links.

You can read the first post about my injury here and my six month update here. I usually write my blog posts on my iPhone during my ‘lying flat’ times. Initially following my injury I could not even look at a phone or computer screen for more than a few minutes without feeling exceptionally ill. I am very grateful to be able to do this now.

To read more about my ongoing story of living with a chronic spinal CSF Leak click here.

Here is a brilliant 2 min animation about Spinal CSF leaks.

For more information about spinal CSF leaks please see the UK charity website at www.csfleak.info or the US charity website at www.spinalcsfleak.org.


Breaking Free!


Do you ever feel like you want to break free?

Break free from something … even though you cannot necessarily pinpoint what it is?
Do you feel like you want to break out and discover more freedom?
Do you desire change, even though you also fear it?

What does it mean to break free?
What does freedom really look like?

There are so many things that can trap us. That keep us bound up physically, emotionally, spiritually & mentally. Things that take control of our lives and stop us being the people we desire to be and doing what we desire to do.

What do you desire to break free from?
What is keeping you bound up?

Maybe it’s:
Fear
Worry
Sickness
Pain
Other people
A relationship
Others opinions
Comparison
Jealousy
A job
Family
Your thoughts
Depression
Anxiety
Addiction
Anger
Hate
Bitterness
Grief

The list goes on…..

Each of us know that there are things that trap and hold us back, but we can’t always see how to break free.

I believe the desire for freedom is something that is inbuilt within us.
To feel free & liberated is a deep human desire.

But what does freedom actually mean and why can we often feel trapped and bound?

At the start of 2015 the brain and neck injury I sustained was debilitating. My life became so restricted as I spent 22-23 hours a day lying down and could do very little for about 3 months (followed by another month of recovery). During that time I felt trapped physically within a body that would not function as it should. I desired my body and mind to work properly, but they wouldn’t and I felt trapped by it. I desired freedom from the injury and the damage it had caused, but each day things hardly got better and they actually began to get worse.

I couldn’t shake it off.
It wouldn’t go away.
If I fought it – it got worse.
I couldn’t break free.

However.

Even though I could not break free from the physical symptoms, I decided, from the start, that the injury couldn’t and shouldn’t control everything.

I decided that I could break free and choose freedom in other areas. I was adamant that the injury wouldn’t take my psychological health as well as my physical health.

Now this was a challenge because the brain injury affected my cognitive processing. At first I couldn’t really do anything. I couldn’t:
Read.
Listen to music.
Watch TV.
Look at or use screens.
Walk outside without support.
Sit up or stand for more than about 15 mins at a time.
Have long conversations.

However, I knew I had to take back what I could control and choose to stay positive, to stay thankful, to not let fear and worry control me.

Even when I could not break free from the physical symptoms I chose to fight for freedom spiritually, physiologically and mentally.

Breaking free copy

Some days that was easier than others.

Even when we face setbacks and discouragements, when things seem to be getting worse rather than better:

We can still fight for freedom.

We cannot control everything in our lives but we can choose to take control of our thoughts and attitudes.

The times I felt most trapped by my injury and illness were the times I allowed my mind to dwell for too long on the negatives.

On the ‘what ifs’.
On the frustrations.
On the horrible symptoms.
On the restrictions.
On how I felt.

It was then that the battle would set in, trying to drag me into an unhealthy mental state. To pull me down into negative thinking and attack my physiological stability.

In those moments I had to fight to break free. To remember all the things I could be thankful for. To choose to believe that things would get better. To focus on the positives and to push through to the inner peace that I knew was deep within my soul.

I can remember as my husband drove me to A&E for the first time, 7 days after my initial injury, I was in a bad way. I felt so dizzy & out of it. Disconnected from the world. Keeping my eyes closed because my brain couldn’t deal with the lights and movement of the car. I could hardly talk, I couldn’t walk without help or support. And on that journey I just kept saying to my husband Matt – “everything’s fine isn’t it. It’s all OK.” And he would just gently, yet confidently, say, “yes it will be fine, everything will be OK.”

I am so thankful that Matt and I share the same outlook on life. That even when things get tough we dig deep to find that inner peace. To hear the gentle calming voice within saying – ‘it will all be fine, you are OK, don’t be scared’.

Now that was day 7 after my injury. I wasn’t, of course, OK and was diagnosed with Post Concussion Syndrome, but it wasn’t life threatening and that’s what the being ‘OK’ was about. However, by week 7 things had got worse; we took our 3rd trip to A&E and I was finally admitted and we got some answers as I was diagnosed with a Cerebral Spinal Fluid (CFS) leak. I then had to again fight to stay positive, to be patient, to trust I would recover, to choose everyday to keep on believing, trusting & pushing through and taking hold of that peace & hope within.

Even when I felt at my weakest physically, emotionally and mentally, when it felt like I was getting battered from all sorts of directions, in all sorts of ways, I had to choose to stay hopeful. To find that strength amidst weakness and to hold on to the way forward.

Breaking free is a mindset.
It is birthed in the heart and received in the mind.
You have to be determined to take hold of it.
You have to choose it.
You have to believe it.

There have been many seasons in my life as well as many daily battles when I have to push to ‘break free’.

My last two blog posts about insecurity, due to comparison and others opinions, talk about some of these daily battles.

We all have them and some of our battles will be similar. And yet because we are all individuals, many of our battles will be unique to our circumstances and personalities.

So to explore this subject of ‘breaking free’ I am going to write a series of blog posts about this subject.

As with all of my posts I will try and make them as ‘real’ as possible. Sharing stories from my own life and things that have helped me.

I am certainly not there yet. I still often have to fight to break free from the things that come against me. I still have days and moments where I feel more trapped, than free, especially in my thoughts.

But I am on the journey.
I have not arrived.
But I have left.
I have seen freedom.
I have tasted of its liberation, peace and joy.
I have lived it.
I have experienced it.

But I know there is more.
I know I can push in further still.
To grasp hold of my freedom and not let go.

And I will not give up pursuing it until I have experienced it in every area of my life and thoughts. That is a life time goal. Unattainable; perhaps, but…

What a vision for life – total freedom! For you and for me.

It’s available. We just have to reach out and take hold of it. We are not built to feel trapped & bound.

We are built to be free! 

“As I walked out the door toward the gate that would lead to my freedom, I knew if I didn’t leave my bitterness and hatred behind, I’d still be in prison.” – Nelson Mandela

Breaking free quote copy

Surviving the Storm: My Battle With Concussion & A CSF Leak.

‘The longer I live the more I realise the impact of attitude on my life. Attitude to me is more important than failures or successes, than what people think, say or do, it is more important than appearance, giftedness or skill. The remarkable thing is that I have a choice everyday as to the attitude I will embrace and I am convinced that life is 10% of what happens to me and 90% how I react to it.’  – Charles Swindoll

It’s been a while since I wrote on this blog. In fact, only a few days after I started the blog, I had (what I considered at the time) a little accident and fell off a step ladder and hit my head, neck, & spine as well as sustaining some other minor bruises.

The end result of this little fall was two and a half months of, at times, severe symptoms which were diagnosed by various medical professionals, firstly as Concussion, then Post-Concussion Syndrome & Whiplash and finally, about 3 weeks ago, I was diagnosed in hospital by neurologists as having a spinal CSF (Cerebral Spinal Fluid) Leak. (This is a tear in the membrane that surrounds your brain and spinal cord. It results in the spinal fluid leaking out and absorbed into your body, reducing pressure and causing your brain to drop in your skull.)

I am not sure we really fully know which of my symptoms could be attributed to what diagnosis, at what point. However, in the end, the CSF leak seemed to fit many ongoing symptoms, a lumbar puncture confirmed ‘low pressure’ spinal fluid and I received treatment for this which helped a lot. (This included an epidural blood patch following over 2 weeks of lying flat in hospital whilst taking caffeine supplements & pain relief).

In short I had battled for weeks with an array of symptoms which included:
Severe dizziness
Lack of balance
Pressure headaches
Severe head and neck pain
Cognitive (thinking) impairment
Sensitivity to light and noise
Nausea
Body shaking and spasms
Struggling to walk very far (and only with support)
Struggling to talk at times
A constant need to lie down flat to alleviate/ ease symptoms. (typical of a spinal CFS leak).
Exhaustion of body & mind

Over the last 11 weeks I saw multiple NHS doctors & consultants, nurses, physios, had 3 trips to A&E, one ambulance to the house, a two and a half weeks stay in an NHS neurology ward, a CT scan, X-rays, 3 MRI scans, (all inconclusive) 1 lumbar puncture and 1 epidural blood patch.

I am currently still on the journey of recovery and building up my strength. Not fully back to normal and still have to lie down at times during the day, especially in the evenings, but I am so much better than I was.

It’s certainly been a challenging 11 weeks which totally disrupted my, and my family’s, normality. I spent 22-23 hours a day, for the first couple of months, lying in bed in a dark room, mostly on my own, doing very little and then two and a half weeks in hospital lying flat as much as possible whilst I waited for various tests and procedures.

Grunge Background

After starting my blog in January, the third blog post I wrote was about Perspective: Stepping Back From The Detail To See The Bigger Picture. I wrote about how our perspective is really important and how we sometimes we need to step back from the details to see the bigger picture. I spoke about how sometimes it’s not circumstances that need to change but the way we see what is happening. Sometimes we have to choose to see things differently, we have to see with new eyes.

Who could have known that the words that I wrote at that time could be so significant for me in the days, weeks, and even months after I wrote them. Sometimes it’s our own words that become powerful in speaking back to us. The words we say or write in one season of our life becomes so applicable to another season of our life, in a new way.

So over the past few weeks I’ve learnt a lot about perspective. Many hours, of many days, I’ve had to step back from the detail to see the bigger picture. I have had to step back from the symptoms to get a larger perspective.

Some days you have to fight for a better perspective.
Sometimes you have to push your way through the details to gain a better understanding.
Sometimes you have to step back from the circumstances and choose to change your attitude.

Especially when things can be:
Scary
Unknown
Different
Exceedingly frustrating
Exhausting

When you can feel:
Very unwell
Naive
Helpless
Weak
Uninformed
Mentally impaired

When the new season requires new:
Patience
Endurance
Wisdom
Strength
Faith
Determination

Grunge Background

The past number of weeks again opened my eyes to new perspective. I can’t recall in my life ever being ill for more than a few days. I’ve never had a brain injury before and I really didn’t know a lot about them. I now have a much better understanding, and a better perspective of people who experience them and similar things.

The challenge of mild traumatic brain injuries, is that they are often unseen. They are not a visible injury. Concussions, whiplash, and often CSF leaks, don’t appear on normal CT or MRI scans so it creates problems in diagnosis, all you have is the symptoms to go on.

It’s a humbling process as you try and work your way through the symptoms, often having to rely on the information you seek out yourself, to work out what on earth is wrong with you and how to get the right treatment. It’s a challenge when you are diagnosed with something that people don’t know a lot about. When your illness or injury is not fully tangible, yet so debilitating, and can often only be diagnosed by the symptoms that you experience and have to try and communicate to medical professionals.

So it’s been a season of learning.

Challenge and hardship are often a place we grow, a place we learn, a place we develop. If we choose to approach them in the right way and with the right perspective.

The Bible NLT Translation, James‬ ‭1‬:‭2-4. You can experience joy through challenging times because you know that it is stretching your ability to endure.
The Bible NLT Translation, James‬ ‭1‬:‭2-4. You can experience joy through challenging times because you know that it is stretching your ability to endure.

Sometimes:
We just have to be patient.
We have to keep walking through the storm and trust the calm will come.
We have to face the challenges of life and then use what we learn to make us stronger and help other people.
We have to keep holding on to hope without knowing all the answers.
We have to fight to stay thankful and see the positives within a difficult time.

It’s all about having the right perspective.

It’s not easy.

Some days you have to fight through the frustration, the fear, the worry and the negative thoughts. Until you can again see with a better, more positive and hopeful perspective and step back from the details of your circumstances.

When I stepped back from the detail in my situation, I could see that it could have been worse. Yes this accident interrupted my life, yes it was frustrating, a real challenge. It totally changed my life for a number of weeks and months. However, I had so much wonderful help and support from my family and friends. I have learnt so much and gained a better perspective and more appreciation of life. And I am now coming through my storm, I am doing well in recovery and I am getting back to some kind of normality day by day.

There is never any point in wasting energy on the ‘why me?’ or ‘what ifs?’ A negative mindset, looking backwards or forwards, just destroys you from the inside out. Even amidst very difficult times there’s always something to be thankful for and others worse off than you. I always chose to believe that my storm would pass (even when I seemed to be getting worse rather than better), others don’t have that blessing, the storm just gets worse and doesn’t go away.


Some days you have to fight through the frustration, the fear, the worry and the negative thoughts. Until you can again see with a better, more positive and hopeful perspective.


So again, with new insight, I say that so much is linked to perspective. We can choose to see the positives or become consumed by the negatives in our lives. We can choose remain thankful for the good things, even when we are going through a dark time.

Often it’s not the circumstances of our lives that need to change. It’s our perspective, it’s our attitude, it’s the way we ‘see’ and think about our life.

Sometimes we need to step back from the detail to see the bigger picture. We then realise that often the storms in life come and go. And with the right attitude and a hopeful perspective we will come through it:
a little stronger,
a little wiser,
a little more thankful for daily life,
and have a little more compassion for others.

It’s all about perspective!

I am convinced that life is 10% of what happens to me and 90% how I react to it.’ – Charles Swindoll

Lets keep asking ourselves: What parts of our own lives could we see with a more positive perspective? Self awareness is always the first step to personal change.


I have now written two update posts about my recovery journey at 6 months and at 8 months; I then have a series of posts about a relapse at 9 months  when it was decided that I probably never had a concussion and all my symptoms could be attributed to a spinal CSF Leak

To read more about my 20 months on story of living with a chronic spinal CSF Leak click here.

Here is a brilliant 2 min animation about Spinal CSF leaks.

For more information about spinal CSF leaks please see the UK charity website at www.csfleak.info or the US charity website at www.spinalcsfleak.org.

Please see this new May 2018 medical paper about the 10 most common myths and misperceptions about spinal CSF leaks. It is by some of the top world experts in treating this condition. I was told so many of these myths by various neurologists, anaesthetists, radiologists and many other doctors during my lengthy and traumatic nearly 3 year battle with a spinal CSF leak. This kind of misinformation caused many delays, misunderstanding and great distress on my already immensely long winded and difficult medical journey.

Click here to read more about my spinal CSF leak recovery following my 4th blind lumbar 40ml epidural blood patch in September 2017 and subsequent ‘rebound into higher CSF pressure/ hypersensitivity to higher pressure’ following that treatment. 

A fantastic informative video that you can refer to about spinal CSF Leaks, their symptoms and treatments is The Mystery Headache: Migraine, Positional Headache, Spinal Fluid Leak? by Professor Ian Carroll at Stamford University Hospitals.

To find out more about Concussion and Post Concussion this video is a great resource: Concussion Management