Becky Hill
Leicester, UK
Bio: I love life. Life is full of wonder, excitement and challenge. Sometimes life is amazing but it's not always easy and not always fun. However, life is always an adventure, a precious divine gift. I journey through life with my husband, 2 daughters and many other friends and family. Learning, growing, leading, listening, inspiring, writing, creating, asking questions and helping others to grow. So that together we can discover what life is all about! In January 2015 I fell from a ladder and have since suffered with daily debilitating neurological symptoms and unbearable daily pain due to a spinal CSF leak (seen on MRI summer of 2019 and in hindsight). Following another very bad relapse of symptoms in the Summer of 2020 I was subsequently diagnosed with chronic arachnoiditis. I have since learned that the arachnoiditis can be seen on my first MRI's in March 2015 so I have always had it and it seems to be mildly adhesive. Both conditions may have been caused by the trauma of the fall and the multiple bone spurs I have in my thoracic spine pressing into the dura. I continue my journey with the support of two UK Midlands NHS hospitals & Neuro teams who have both diagnosed the leak and arachnoiditis and are both supporting me to try and find more long term healing and management of these awful, often very misunderstood medical conditions. I currently also serve in pastoral ministry and church web administration alongside my husband Matt Hill who is an ordained Pastor at Life Church, Leicester, UK. http://www.lifechurch.co.uk Email me at beckyhillblog@outlook.com or follow me @beckyhill3 on Twitter or YouTube at Becky Hill https://www.youtube.com/channel/UC9ZkCy9B_IpeaGrXd0CEgow Here is my new summary video of my whole medical journey as well as footage of my January/ February 2021 adhesive arachnoiditis relapse/ flare and treatment with IV Steroids. https://youtu.be/cKECz_fCnFw To see my daily video diaries from this time please see my YouTube channel.
Becky Hill's Blog 
Hi Becky, I would be interested in republishing GRAPPLING WITH THE ‘SHAME’ OF HAVING A RARE INVISIBLE ILLNESS on chronic-joy.org. Please email: care@chronic-joy.org. Thanks, Pamela Piquette – President
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I sent a follow up email and there may be additional contact, so I’m hoping there will be a more effective way to connect. Pamela
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Thanks yes I saw it. Need a new picture really. So will get that sorted then you can have the info you asked for. Thanks
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Hi there did u ever have surgery to relieve your symptoms ?
Mike
Mdelales@gmail.comm
Currently living the same hell w 3 small boys.
❤️
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So sorry to hear you are suffering too. But no Mile. My leak has never been found. Until recently all my scans have been clear. I have just had one MRI recently where they think they have seen fluid outside the dura in my neck. So I have only had blind epidural blood patches. You have to find the actual leak site for surgery and also I live in the UK and there are not really any experienced neurosurgeons specialising in spinal CSF leaks. So a lot of people with a found leak requiring surgery have to travel abroad. Unless you have access to good health insurance (which few Brits do) you have to find or raise 10s of £1000s to pay for it. And of course there are no guarantees. Thankfully I am with a good NHS team in the UK. But they are still learning amidst all the usual NHS limitations. We are hoping things will improve as awareness is spread and our plight is heard. I also hope things improve for you too. Having a leak with small kids is beyond tough!! 😔
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Sorry Mike – managed to mistype your name in my reply!!
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Hallo liebe Becky, ich hatte dir ja schon mal gschrieben und habe eine Frage: bist du gegen covid geimpft? ich hatte eine impfung vor acht Tagen und habe seit dem schreckliche Kopfschmerzen.
Ich hoffe es geht dir gut .
viele grüße aus Deutschland Gitti
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Meine Antwort auf Deutsch und Englisch: Liebe Gitti – ja ich habe jetzt meine beiden Impfungen – Oxford Astra Zenneca. Meine erste Dosis verschlimmerte meine Symptome für 2-3 Tage. Die zweite Dosis, die ich vor ein paar Wochen hatte, war in Ordnung. Ich hoffe, dass sich die Dinge bald verbessern. Eine Reihe von Menschen kann sich 1-2 Tage oder sogar 1-2 Wochen nach der Impfung schlechter fühlen. Beste Grüße, Becky x
My reply in German (Google translate) and English:
Dear Gitti – yes I have had both my vaccinations now – Oxford Astra Zenneca. My first dose made my symptoms worse for 2-3 days. The second dose I had a couple of weeks ago was fine. I hope things improve soon. A number of people can feel worse for 1-2 days or even 1-2 weeks after their vaccines. Best wishes, Becky x
Original question translated: Hello dear Becky, I’ve already written to you and have a question: have you been vaccinated against covid? I had a vaccination eight days ago and have had a terrible headache ever since.
I hope You are fine .
many greetings from Germany Gitti
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