Tag Archives: pain

We Are All Messed Up!

Do you ever wonder:
If other people are like you?
What their ‘real’ lives are like?
Who are they really behind that mask or behind those closed doors?

Do others really struggle like you do?

Over the years I have learnt that people are more similar than we might think. Although our lives and challenges are, in many ways, unique.

We ALL have struggles.

Life brings all of us both joy and pain.

Even those people who might want you to think that they have it all together. The ones who seem like life always goes well for them – the beautiful couple down the road and the perfect family next door.

Yes; they struggle too.

Their challenges will be unique to them and you will often never know they exist.

But I assure you – they are there.

“Be kind, for everyone you meet is fighting a hard battle.” – Plato

from darkness

Over the years I have had the privilege to connect and build relationships with people from all different backgrounds and cultures, both here (in the UK) and abroad.

I love people. I love discovering who they really are and then helping them to reach out towards fulfilling their potential.

One of the things I have learnt is that although the world is full of diversity, which is wonderful, we are ALL actually more similar than we might think. Things are different outwardly for us all and yet inside we often face the same challenges, temptations and battles.

I recently watched an episode of a series called ‘The Tribe’ on Channel 4 about a native family living in rural Ethiopia.

It was fascinating.

Obviously their lives were completely different from ours. They lived in mud huts, kept animals, were self sufficient, had arranged marriages and yet as you watched it and listened to the translation you realised that families face a lot of the same issues.

Fear,
Worry,
Anger,
Insecurity,
Struggles,
Pain,
Rebellion (yes teenagers in rural Ethiopia like to push the boundaries of tradition and etiquette just like Western kids do).

In the episode I saw, one of the teenage girls used to love going to the market in the town to look at & buy new items of clothing. On this one occasion she ran off with some of her family’s money to go and buy colourful bras (even though the traditional dress was that women usually went topless). The argument that took place upon her return was so similar to arguments in many teen homes in the West!

We are ALL more similar than you might think.

FullSizeRender

There is a song by Lecrae, featuring Kari Jobe that really spoke to me following its release a while ago. It is all about the fact that we are ALL broken, messed up and in need of grace.

“Broken pieces actin’ like we ain’t cracked,
But we all messed up and can’t no one escape that…
… Ain’t a soul on the planet
That’s better than another
And we all need grace in the face of each other” – Lecrae

I love this concept.

We are ALL messed up in some way and in need of grace (undeserved kindness, understanding and forgiveness).  

Grasping this stops us believing there is a hierarchy of ‘goodness’. That some of us are just ‘good people’ and some of us simply ‘bad’.

The revelation that people are more similar to you than you think, is actually empowering because it makes us all more equal. It demands that we treat one another with grace rather than judging one another with faulty or hypocritical principles.

When we can accept that we ALL have weakness, vulnerability and struggles; our selfishness is challenged and we can actually become more compassionate.

It changes our pride into humility.

We stop rating ourselves as better or worse than others but instead recognise that we are all ‘messed up’, in some way, and in need of grace.

It levels the playing field.

As I wrote in Surviving the Storm Six months on, I have been faced with my own frailty and weaknesses this year, possibly far more than any other year.

This year has challenged my identity and chipped away at my confidence. Physical weakness can also challenge us mentally and emotionally.

You have less energy for life.

However,

I am learning that I need to embrace this process rather than fight it.

We must allow our own struggles to build in us authenticity and a deeper compassion and grace for others.

It’s a painful process.
It’s a humbling process.
But it’s also a beautiful process if we let it run its course.

In A Year Ago Today: A Journey Through Grief (about my Mum’s death) I wrote:

“Suffering can, if we let it, unite and draw us together in a way that nothing else can. It strips us of our titles and crafted exteriors and touches the heart.”

Suffering causes different things to happen to different people: Some people can become hard and bitter, consumed by their own pain and need. Others learn to direct their pain into compassion and empathy for others.

It is these people that find new purpose within their suffering. They have other people to think about and focus on which helps to heal their own wounds.

It changes our perspective.

Self pity; destroys us. It makes us miserable and angry.
Compassion; fills us with positive passion. It moves us to see others needs and make a difference in their lives.

Feeling compassion, for others, in the midst of our own struggles, brokenness and pain, builds bridges that helps us to identify with all sorts of other people.

from darkness

We are ALL messed up in some way.
We ALL have flaws.
We ALL get stuff wrong.
We ALL make mistakes.

Most of the time we will never know what has happened in someone’s life to make them like they are.

We ALL have a story;
Things that shape us.
Things that break us.
Things that heal us.
Things that strengthen us.

We are ALL more similar than we think and; “We all need grace in the face of each other.”

“It’s incredibly powerful- life changing- to be in a relationship where we can be totally vulnerable without fear, when the person knows the worst about us and still accepts us.” -Samuel Chand

Who could you show grace and compassion to today?

Life is not meant to be easy!

Life is a gift.
A wonderful privilege.
Full of adventure, love & happiness.
Life brings both wonder and excitement.

But,

Life is not easy.
It is challenging.
It often feels hard.

Hard work.
Hard relationships.
Hard choices.

Of course many of us recognise that some people have had a ‘harder life’ than others. (Which helps us keep a balanced perspective).

However,

We are also very aware of the challenges we ALL face.


Be kind, for everyone you meet is fighting a hard battle – Plato


Do you often feel that life is hard?
Harder than you thought it would or should be?

Perhaps?
Definitely?
Always?
Sometimes?

Why is it that?

white paper blanks on rope

I’ve been thinking a lot about this lately and it has caused me to think through a number of questions:

Is life actually meant to be hard or are we getting a raw deal?
Do other people find life as hard as you do?
Do you hope that life will get easier someday?

Sometimes I think we have believed a lie that life is supposed to be EASY.

That it is easy for some.

Easy for them.

In the West, we are sold that lie every day. Adverts, films, books, magazines and social media, all feed the ideal of a better, happier and more comfortable life.

But do things and comfort actually make you happy?

white paper blanks on rope

I often say to my husband that the media often sell us the lie about the ‘perfect family life’.

The good looking Mum and Dad have an awesome, romantic, yet down to earth marriage. They work hard, but also have lots of time to invest in their beautiful children. They have plenty of money, a stunning home, car, clothes and go on amazing holidays.

Life looks easy!

Does that not sound attractive?

But in reality family life is often anything but ideal.

FAMILY – is often hard work!

In many ways I have what might seem an ‘ideal’ family life. Matt and I have a great marriage. We have to work at it, like everyone else, but we managed to set a firm foundation from the start which has provided great stability in our home.

We have two healthy, beautiful, kind, loving and intelligent girls who flourish at school, are creative and full of life.

And yet we, like many others, find that in reality family life is often exhausting.
Parenting is tough.
Directing selfish kids is a challenge.

We can dream of consistent ‘family bliss’ but I am not sure that it really exists.


FAMILY – is often hard work!


Our kids regularly fight, argue, push against boundaries, complain and challenge us until we are tempted to run away and hide under a rock for a while – until things get easier.

Often ‘quality family time’ is far from wonderful. In fact sometimes it feels like something we all have to endure rather than thrive on. (Especially when you have small children)

I actually started writing this post on holiday. The ‘prime’ of quality family time. Supposedly a time of fun, laughter, love and relaxation.

….And although there is truth in that (we have had some wonderful times together)…

In reality even holidays don’t stop the responsibilities of being parents and the kids squabbling & complaining.

So what do we do?
Do we just give up on family life?

No!

We know we have to push through the hard times so that we can then appreciate the wonder and beauty of family.

To keep on keeping on!

No one really lives the fairy tale ideal anyway!

leadership pain

I have just finished reading a fantastic book called ‘Leadership Pain’ by Samuel Chand. It was both refreshing and insightful to read him, and so many others, acknowledging the ‘pain’ that is unique to leaders. Whilst encouraging us to keep on growing, which means constantly raising the threshold of our pain.

Often people can look at leaders around them and assume they must have life all figured out. That they enjoy their ‘power’ and ‘bask’ in the limelight.

This is rarely the truth.

Of course people can pursue and abuse power and hide their true selves.

But true leadership is often more challenging than many of us imagined. In the same way that the responsibility of leading/ parenting our children is.

Leadership, like parenting, is often hard. It is often painful. You have to make many sacrifices. You will get hurt.

You are leading real people. Helping them to grow and develop. You have to have courage to lead the way, even when you haven’t been there before yourself. Even when people don’t get you or your decisions and push against your authority.

Samuel Chand writes,

“There is no growth without change, no change without loss and no loss without pain. If you are not hurting, you are not leading. Your vision for the future has to be big enough to propel you to face the heartaches and struggles you find along the way.”

Leadership and parenting are inherently HARD. So you have to have a vision for the future that keeps you going through the tough times.

You must believe that your current investment, as a parent and leader, is worth while. You need hope for your child’s future, hope that many of the people you lead, will grow, develop and move forward. That is where you ultimately find joy and satisfaction.

It all comes down to perspective. Without the right perspective we can get drowned by the hard times and lost in the pain.

white paper blanks on rope

Life, in its essence is often NOT easy and the sooner we get our heads round that, the sooner we can prepare our minds to face the challenges life brings.

Responsibility
Hard work
Pain
Suffering
Rejection
Perseverance

Are all a fact of life.


Life, in its essence is often NOT easy and the sooner we get our heads round that, the sooner we can prepare our minds to face the challenges life brings.


We all have dreams for the future but they will usually not fall into our laps. Instead, we must face the fact that often WE have to make the right choices and keep on making the right choices for things to work out.

We have to CHOOSE the longer and harder road to experience longer term satisfaction.

We have to invest in our lives early on, making the necessary sacrifices along the way.

People want love without sacrifice.
But that does not exist.
Love and sacrifice are coexistent.
That is why we find family life and relationships hard.

Leadership is the same. Great leaders are not driven by selfish ambition. They are driven by a desire to serve others. To do this, great leaders love their followers.

And if:
LOVE = SACRIFICE.

Great leaders, like great parents, sacrifice for those they lead.

Sacrifice in its essence is hard.
Which means true love is hard.

Life was never meant to be easy. Life is an adventure. Adventures are in their essence challenging. But they are also so exciting.

We cannot experience the joys of life without embracing it’s challenges. It is the hard times which help us appreciate the good times.

It’s all about perspective.


You will never understand pleasure without pain. – T D Jakes


Do you find life hard?
How do you find strength to face it?

Surviving the Storm Six Months On: My battle with Concussion & a CSF leak

This post is a follow up post to Surviving The Storm: My Battle With Concussion And A CSF Leak that I wrote 3 months ago.


Life is a journey through different seasons. Seasons of celebration, happiness and success and seasons of loss, pain and frustration.

Sometimes unexpected things happen and life changes in an instant. Sometimes that change is temporary. Sometimes permanent. But it always brings a season of adjustment with it.

At the start of 2015 my life was going along normally. It was the start of a new year; a new season; a new time.

Then I had an accident.

In many ways, it was just a small accident. In an error of judgement I put a small step ladder on an uneven surface whilst painting. I painted with it there for hours, then in one moment the ladder toppled over and I fell.

One mistake on my part. And one I have paid for over the past six months.

We all make mistakes every day. Often the consequences are minimal. Then a day comes when we make a mistake that has bigger consequences.

We can’t change what happened.
We can only learn from our mistakes.

That journey is never easy.

When I fell, I hit my head, back, neck and arm. It was a blunt but forceful impact to my lower head and although I felt the impact and felt slightly dazed, in general I actually felt OK.

So I did what I always do: I got up and carried on.

I even joked to others about falling off that ladder – oblivious to what had actually taken place.

Then as I wrote in Surviving the Storm, over the next week my injury caught up with me and everything began to unravel.

Grunge Background

Brain injuries like concussion, post concussion and CSF leaks are tough. They are difficult to fully diagnose and yet so debilitating. Your brain is like mission control to your whole body and when your brain gets rattled or strained so many things get out of sync.

I am one of the blessed people whose injury, although serious, was comparatively mild. Severe brain injuries are life threatening and permanently life transforming. I am so very thankful that it was no worse.

However,

It was and still is a storm in my life. It was debilitating. It changed my life for a time. It is still improving but it has not yet fully passed.

Four or five months ago, at its worst, the only way to ease the symptoms was to lie flat and do nothing. For hours, days and weeks on end.

Have you ever tried that?

Doing nothing but lying flat in a dark room.

It can be torture. Especially when you are dizzy and in pain.

I was then finally admitted to hospital 8 weeks after the initial injury. Although tough in itself, I was thankful for this, because we got some answers and I was finally diagnosed with a CSF leak (cerebral spinal fluid leak).

Many people will not know that after a few days in hospital I faced one of the darkest days in my life.

Some events took place that probably during an average day I would have coped with and managed mentally and emotionally a lot better than I did.

But on that day a pattern of events unfolded that involved a senior hospital staff member with an exceptionally bad attitude.

And it totally floored me.

I have never felt so utterly weak and helpless. I was in so much pain, was mentally impaired by the cloudiness and dizziness, and faced a very unpleasant situation that I was powerless to deal with.

Those two days (because things got worse before they got better) were probably two of the the hardest days of my life, in many ways.

I have never felt so desperate, so weak, so intimidated and so vulnerable.

I cried a lot that day, desperately and deeply (in a hospital ward full of other people).

Have you ever come to the end of yourself?
When you have no strength left physically or mentally.
When you feel desperately vulnerable.
When you can’t fight any more.
When you don’t know what to do.

At its worst my injury left me in severe pain and my body would start shaking violently in response. As this happened my mind would cloud over and take me into a drunk-like state.

You can’t think straight, struggle to talk, can hardly stand and walk, and it can be quite distressing.

You feel immensely vulnerable and it was in my vulnerability that I faced this intimidating situation that I couldn’t deal with alone.

In that moment I thank God so much for people who loved and cared for me. There was a wonderful nurse at the hospital who reached out to me in my desperation with compassion and understanding. My church family had already dedicated a week to praying for me and they fought for me spiritually in my dark hour.

My husband was at a pre-planned family gathering with my girls that day (over 2 hours away). It was to celebrate my Mum’s birthday, in her remembrance (just over a year after her death). He dropped everything to leave, earlier than planned, and got to me as soon as he could (about 3 hours later).

In my darkest hour I was physically and mentally wrecked and alone, and yet I did the one thing I could: I reached out to God in the midst of my desperation. 

I knew that He would carry me.

When there was nothing left of me I knew He would hold me.

When I felt the most vulnerable I had ever felt, I knew I had advocate who was fighting for me.

And that is what got me through. Believing, hoping and trusting that things would get better.


I have never felt so desperate, so weak and so vulnerable.


CSF leaks can be very hard to fix. There is still a lot of uncertainly about the best ways to treat them. After two and a half weeks in hospital I ended up having a blood patch (where blood is injected into the epidural space in your spine) which helped a lot, but it certainly didn’t solve everything.

I again had to decide to hold onto my hope and have faith that it would get better. And things have got better. A sense of normality returned, but even 6 months on life post-injury is still a challenge in many ways.

I still can’t do everything I once did.

And that is hard.

As I shared in ‘Is Busyness a Choice?‘ I was a busy person. One of those people that always had a lot on and did a lot of rushing about.

But at the moment I still can’t rush about like I used to.

And it is SO frustrating.

I still have to sit and lie down at regular intervals. Especially when I have a lot on.

I often feel lightheaded, my head gets cloudy and a spaced out.

Life takes much more effort. Which is a mental, as well as a physical challenge for me.

I am a doer, a get up and get on type of person, but my body won’t always let me do that at the moment.

When your energy levels are low, everything becomes so much more difficult. The things you have to do become that much harder. And even your mental processing becomes impaired. These are all things that I still have to battle through daily.

I have to have wisdom to work out my days. If I know I have a lot to do I need to make sure I have clear rest points in the day, both before and after the activities I need to do.

It is manageable.
But it is frustrating.

And yet despite all these challenges I have learnt and grown so much.

I have so much more empathy and awareness of people with health issues. I hardly ever used to get ill, so my experience of battling this has given me more compassion for people who are struggling with injury and illness.

I have had to develop a longer term perspective so as not to get overwhelmed with the daily challenges. I have to see the bigger picture. 

I have had to learn to say no to doing too much, allow other people to help me, and tell people when I am struggling. Which doesn’t come easy to me because I fight against self pity at all costs and do not enjoy being a victim.

Life has been more frustrating.
I have faced increased feelings of discouragement.
But I have certainly become more self aware and developed more humility.

The last six months have been tough in many ways.
However,
I believe we can never give up or lose hope.

Without hope we have nothing to live for. It is always faith, hope and love that give us confidence for the future.

I have faced my own vulnerabilities and weaknesses like never before. And more than ever I know I cannot rely on my own strength to keep going and do all I am meant to do.

But that is not a bad thing.

Coming face to face with your own weaknesses and vulnerability can be a good thing.

In the Bible God said this to the Apostle Paul when he was struggling with his own weaknesses:

“My grace is sufficient for you, for my power is made perfect in weakness.”

Paul then wrote in response:

“That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.” 2 Corinthians 12:9-11.

When I feel weak, I realise that I can’t ‘do life’ on my own. I realise that I don’t have the capacity and strength alone to face the challenges that life brings. But I do know God will work His power in and through me…. regardless.

That is grace.

The Almighty God uses us fragile humans in our weakness and vulnerability and makes us strong in His power.

When I come to the end of myself I have no where else to turn but God. It is then that God’s power works in and through me in the most beautiful way.

Because when you come face to face with your fragility you understand that we are all the same.

We are all human.
We all have struggles.

It is then, as God shows us His love and grace in the midst of our own struggles, that we can show love and grace to others in the midst of their struggles.

That is the power that works within us.
The power of love and the power of grace.

It is the mystery of God.
The divine paradox.

That weakness brings strength.
And that strength is spelt LOVE.

And love and grace are all you need!

So that’s my journey of surviving my unique storm. It is still not over, but writing this post has been helpful for me in looking back over the past six months, remembering, learning and growing towards the future.

This post has, in all honesty, been written through tears as I attempt to share some of the darker realities and vulnerabilities of my journey.

However, what I do know is that these dark days are not without purpose. They have been used to strengthen me and they will be used to help others.

There is always new strength to be found in weakness. Sometimes the journey to finding it will be painful.

But it is always there to be found.


How do you find strength in weakness?


Comments are always welcome below or on my social media links. 

To read more about my ongoing story of living with a chronic spinal CSF Leak click here.

Here is a brilliant 2 min animation about Spinal CSF leaks.

For more information about spinal CSF leaks please see the UK charity website at www.csfleak.info or the US charity website at www.spinalcsfleak.org.

This is a wonderful new May 2018 medical paper about the 10 most common myths and misperceptions about spinal CSF leaks. It is by some of the top world experts in treating this condition. I was told so many of these myths by various neurologists, anaesthetists, radiologists and many other doctors during my lengthy and traumatic nearly 5 year battle with a spinal CSF leak. This kind of misinformation caused many delays, misunderstanding and great distress on my already immensely long winded and difficult medical journey.

This other in depth 2018 medical paper is about both low and high intracranial pressure syndromes and their similar and different symptoms. It also mentions cross overs with other headache types. When a patient suffers with a spinal CSF leak long term it can cause massive fluctuations in their whole pressure system both whilst suffering from a spinal CSF leak and following treatment. This is why lumbar puncture pressure readings and ICP pressure monitoring can prove an inaccurate disgnostic tool for SIH as this paper refers to as does the 10 myths paper. My initial LP reading was a 7 which was considered ‘evidence’ of low pressure by some doctors and normal by others.

This post was inspired by my last post called ‘Breaking Free! From Pretense’.

A Year Ago Today: A journey through grief and what I have learnt.

A year ago today we sat in an ICU relatives room being told that today was the day that they would turn off my Mum’s life support.

Those few days were a tough and exhausting journey.

In November 2013 we discovered that she had a brain tumour. On January 8th 2014 the doctors operated on it. The operation was complex and took 14 hours. In their eyes it was a success. However, the next 48 hours proved fatal as it emerged that she also had an infection in her pacemaker that caused septicemia, and this combined with the brain surgery overwhelmed her already fragile body.

Those few days opened my eyes.

This was my first experience of ICU. There were critically ill people everywhere. Attached to machines keeping them alive. Many of whom would recover and yet many of whom would not make it or at least only ‘make it’ through to a life dramatically different from their previous one.

Mothers,
Fathers,
Sons,
Daughters,
Sisters,
Brothers,
Friends,
Lovers,
Husbands,
Wives.

And the waiting room was full of people waiting for them. But unlike most waiting, it was often waiting to see whether a loved one would live or die. Waiting to see what that life-changing injury, illness or surgery would do. What it would look like within their family. To say goodbye or to welcome someone back. And even if they came back, their life may be radically changed.

And in that room it was different. A different perspective. An unsaid understanding that people were fighting a battle. That people were riding a storm.

Waiting.
Hoping.
Loving.
Holding on.
Surviving.

When you left that room and went out into the wider hospital or world outside, it was different. Staff at work. People visiting patients. A coming and going of life and normality….for some.

But our experience was far from normal.

There was a part of me thankful to have been there and seen it. To be there and remember & realise that while we go through our ‘normal’ lives, others are facing turmoil, crisis & pain. Sometimes it’s hidden away behind a door titled ICU in the middle of a hospital. Sometimes it’s in a hospice down the road. Sometimes in a house next door. Sometimes it’s hidden in the lives of those you work with, walk past, sit next to on the bus. The shop assistant, the teacher, the security guard, the single mum.
 
People are hurting even though you may not know.

wolken

We lost my Mum a year ago. A year ago I experienced my first real experience of personal grief, along with all the questions and thoughts that go through your mind.

“No one ever told me that grief felt so like fear. I am not afraid, but the sensation is like being afraid.” – C.S. Lewis

For the first few days & even weeks after it happened, I felt an anxiety & what was like a ‘fear’ I hadn’t felt before. The above quote from C.S. Lewis resonated with me. It’s a feeling like anxiety and fear and yet you are not actually afraid. A heaviness. A pain within. A pressure that builds up inside you and you don’t know what to do with it. The thought of going out and seeing people you know can be hard. A ‘fear’ grips you. An anxiety I had not felt before.

And yet…

I chose to push through, to fight, knowing that I couldn’t let those feelings debilitate me. I had to push through, to break through. To discover purpose through pain. To face the questions. To let go of guilt & embrace the way forward. The way out. The way that sees good triumph over evil. The way that does not allow death to destroy.

I have learnt that the best way in life is not denial.
It is to face challenges head on.
Knowing that you will get battered through the journey.
But knowing that taking a battering and coming through stronger is better than allowing yourself to be destroyed inside due to denial.

So that is the journey I have walked. A journey that turns difficult things into challenges that make you stronger and wiser. A journey of self-awareness. A journey that helps you to feel more empathy & compassion for others. And a journey that becomes part of your identity, but that does not define who you become.

Some great words that someone sent me at the time that really helped.

So, one year on, I sit here and I remember the pain. I remember the exhaustion. I remember those days in hospital where my loving God was my only strength & the source of the deep peace I felt throughout. When words from the Bible, music & other inspiration carried me and become an anchor that held me tight.

I remember the relief when my husband, Matt, was able to come to London a day after my Mum died. I remember the drive back to Leicester in the car: utterly spent, physically & emotionally exhausted and yet finally being able to share with my husband the full journey of the last few days.

I remember when I got home. The desperate need to find a photo of my Mum looking healthy, so as to replace the image of someone who hardly looked human lying in that hospital bed. Grotesquely swollen from head to foot. Covered in wires.

I remember the pain, the questions & things to work through in my mind. The tears. The memories. The exhaustion of sleep lost, of pushing through.

But here we are a year on.
Today marks the anniversary of that day.

I have learnt that each person deals with and faces grief differently. There are few rights and wrongs. I have always felt grief was much easier for me than some. Partly, because I lived over 3 hours away from my parents. Our lives were no longer as intermingled as they were as I was growing up. I did not have to look daily at the empty chair. I was not reminded hourly, daily of the person lost. And perhaps because my relationship with her was quite complex anyway and had been for a long time. (Although that brings its own challenges into the grieving process).

And yet I know that what gets me through this, and all the things we face, is an ability to see the positive amidst the negative. A training of the mind to face challenges head on & to learn and grow through them. An inner strength that comes from my deep relationship with God. An innate gratefulness that there are always blessings, hope & joys in life to be found – even amidst the pain of death.

While we were in the ICU waiting room there was a couple waiting for their 20 year old son to wake up. He had been in an accident & was in a coma. They didn’t know if he would wake at all.

They waited,
ate,
slept,
and washed,
in that hospital waiting room.

They had been there about 10 days. They didn’t want to leave in case he woke up and they were not there.

On that Friday afternoon my family sat with my Mum as they turned off her life-support. An agonising time which seems to go on forever as the heart continues to beat for a good few minutes after the breathing has stopped. And the heart rate goes up and down until finally, agonisingly slowly, dropping to zero.

It was horrible.

I tried to put music on my phone and hold it to my ear to drown out the beeps of the heart monitor that lie to you that a person who is gone is still there.

However, as we left the ICU that day for the final time, I saw that couple we hardly knew still waiting for their son to wake. We had shared a connection. We had shared the pain of watching a loved one in the throes of death. And as I looked up at that mother she immediately knew what had happened.

That anxious mother, who did not know if her son would live or die, responded like this:

She held me.

In that significant moment, someone I hardly knew hugged me.
With a touch that I needed.
A touch that understood and felt the pain.

And I whispered to her, with all the strength I could muster “I really do hope things are different for you.” She replied with deep gratitude and briefly shared how touched she was for someone to say that in the midst of their own pain.

I will never know what happened to that family. But I do hope things went well for them.

Never let your pain define you.
Never become so consumed with yourself that you cannot feel another’s pain.
Instead allow your heart to become tender.
Allow yourself to reach out to others amidst your own struggles & vulnerabilities.

Everyone you meet is facing some kind of battle. Some are having to fight harder than others at that moment.

The beauty of humanity is that suffering can, if we let it, unite and draw us together in a way that nothing else can. It strips us of our titles and crafted exteriors and touches the heart. It has the power to break through masks, if we let it, because it touches who we really are.

And we all need that:
Sometimes our hearts need to be exposed.
Our weaknesses need to be seen.

Because it is then we realise that we are ALL just fragile humans. It is then we realise that we are ALL more similar than maybe we thought. It is then we know that we ALL face challenges and we ALL feel pain.

So let’s choose to journey through life with compassion and care. Understanding that we are not dissimilar. We do not need to fight one another. Instead we can support one another and choose to ‘hold’ one another even in the midst of our own pain.


Suffering can, if we let it, unite and draw us together in a way that nothing else can. It strips us of our titles and crafted exteriors and touches the heart.